Spina Bifida Association

Area

Northern Virginia and Charlottesville area

There is a fee for the national organization which is waived if families cannot afford it. Voluntary donations are welcome.

Provides support to adults and children with Spina Bifida (and related disorders) and their families, ages birth and up.

Answers questions by phone/mail
Support group meetings
Information and resources
Social or recreational events
Sibshops or sibling support
Matches one family with another: informal matching of families who attend support groups, including Spanish speaking
Regional resources available through the Chesapeake Potomac Spina Bifida Association
“Special Needs Fund” that families can apply for